We got an email today confirming that our reminderbands have been shipped,this should take around 7-10 days.I have bought some money tins,I'm just trying to get someone to donate their time and business to make up some flyer's to put on the tins.I also need the flyer's to hand out to businesses.Basically something with a colour picture of Jayda,what her benefit is called and a bit about her and what she has.I have had a price,but if someone wants to do this as their donation that would be GREAT!
I have been back in contact with the bank,the account is now set up,it will be held in trust for Jayda,it will not earn interest,it will be set up so people can go to bank and put in the money,it will be run by us for now.We could not call the account Jayda's PHACE Journey as this would mean registering as a business,and then running as a non profit organization.As this charity is just for Jayda the bank has said it can be run like this.The only money that will not be spent directly on Jayda will be for the purchase of more reminderbands,blank DVDs,copy paper and plastic sleeves.We have payed for all that so far and that we don't mind.
Still waiting to here back from TEXAS CHILDRENS HOSPITAL,they have confirmed receiving fax so it's wait and see.I can say that the Dr we have been corresponding with will be personally looking at Jayda's records.She has been wonderful so far helping us enroll Jayda in the PHACE Registry.This is a big thing for us as we feel very strongly about Dr's and researchers being able to learn more,and as PHACE kids are so different to each other.
One last thing the Followers gadget has disappeared this is a Blogspot problem,so if you do want to be one just be patient until it works again.
Cheers Matt and Tiff
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