Tuesday, November 27, 2012

Third Round of Laser



On Monday the 19th of November Jayda had her third laser treatment. Again a very early start to the day, but we got home before lunch again which is good. Dr Halbert thinks this will be last treatment and will do some little touch ups if needed. Even before this laser treatment Jayda was looking very good. She loves showing and telling people about her spots and it's something we admire in Jayda. She is courageous and fearless.



Wednesday, November 14, 2012

Halloween and Stuff

Here are some pics of the girls dressed up for Halloween, they went to a party then did a little trick or treating. Halloween is still not as big here in Australia as USA but the kids love it. The other pics are from Mandurah. We had a little cruise in the Valiant and stopped for lunch and the girls had a swim.

Our two little witches and their friend Dracula

Jayda loves posing 

Amelia drawing in the sand


Family Birthdays



We have had two big birthday celebrations in the family. The first was Jayda's cousin Sienna's first birhtday and the second was her Uncle Jarryd's 21st birthday. Jayda's Mum Tiffany made both the cakes and both parties were great.

Sienna's birthday cake


Jarryd's birthday cake



Our New PHACE Friends

From the time Jayda was diagnosed with PHACE Syndrome we have always hoped that we would find people in Australia. Well in the last month we have found two families, thanks to our Facebook PHACE Community. They are Steve, Rose and their daughter Scarlett and Lisa and her daughter Felicity. We have become friends with many of our overseas families and in 2010 were fortunate enough on our Texas trip to meet Yury, Fabian and Gissie. Though it may take some time we can't wait to meet our new Aussie mates. I would like to say a thank you to Felicity's Mum Lisa who has put us in touch with another Neurologist here in Australia so we can get another opinion on Jayda's vascular anomalies.

Steve, Rose and Scarlett

Lisa and Felicity

New Norcia and York Trip.




Uncle Graham,Matt and Jayda

A couple of weeks ago we went to York Western Australia to visit Matt's Uncle who is housesitting. It is only hour out of Perth but you really feel like you are in the country. We also drove from York to New Norcia to visit Matt's old boarding school. For Matt it was a trip back in time not being there for 22 years. New Norcia was established by the Benedictine Monks and to this day the Monastery is still a going concern, no more schooling there just tourists like us.


The boys college

The boys chappel

Tuesday, October 16, 2012

Jayda's car cruise


This is a video of a car cruise Jayda went on. We went to Dwellingup, Western Australia with the STEEL BUMPER CAR CRUIZES WA. We as a family love our cruises in our 1966 VC Valiant.

This is our 66VC Valiant.

Tuesday, August 7, 2012

Fun Days At The Park


Here in Perth, Western Australia it is winter and it has been very cold this year. So when we have nice sunny days we try and take the kids to a park. We love going to Kings Park as it is massive and so much to do there. We have also discovered a new park which is pirate ship themed.





Second Round Of Laser



Jayda has just had her second round of laser therapy. Another early morning at the hospital but we were home by lunch time. It was decided that this time around her Dr would turn the laser down as Jayda had a fair amount of scabbing after her first. She woke up in recovery just fine and wanting her icy pole. It has been a week now and already it is fading with just a very small scab.



Wednesday, July 4, 2012

Holiday in Bali


In June we took a family holiday to Bali, Indonesia. It is only a four hour flight from Perth and cheap. We stayed at the MELIA RESORT in Nusa Dua which is about a 20 minute drive from Kuta. The girls loved swimming everyday and we had great weather. The people are so friendly and they just adored the girls. We definitely will be going back.






Laser Treatment Progress

Well it is now been over a month since Jayda had her laser treatment and there is definitely a change. The redness on her top lip is gone and the broken capillaries on her face have lightened with some having gone. She was left with only a little scar from some scabbing that she picked off other than that it has been a great outcome.









Sunday, May 6, 2012

Laser Treatment.

Jayda had her first Pulse Dye Laser Treatment today under General Anaesthetic. It was an early start with us needing to be at the hospital at 7:00am and Jayda was not allowed to drink from 6:00am. Jayda was very calm today and only cried when they put the mask on to put her to sleep. Her surgery was about 15mins and when we got to recovery she was sitting up waiting for her icy pole. It was a bit confronting seeing her bruised and swollen. Her next one will be in a couple of months and Jayda's Dermatologist Dr Anne Halbert is excited at the outcomes for Jayda.

Tuesday, May 1, 2012

ANZAC DAY

In Australia we have have a day that we reflect on the men and women who have sacrificed their lives for our freedom. We call this day ANZAC DAY. Jayda has had three relatives that have had to fight at war.Her Grandad was in Vietnam and Malaya, her Great Grandfather was in World War Two and her Great Great Grand Uncle was in World War One and killed in action at Gallipoli. We went to John Forrest National Park for the day with Tiff's Mum and Dad and Sister. We had a BBQ lunch and then went exploring some of the park. The park once had a train line but all that is left is tunnel built in 1895.
Private Martin Michael Dillon 13th Battallion K.I.A
Private John William Dillon 2/19th Battallion P.O.W