Our Goal

Our goal is to get Jayda to the U.S. to the TEXAS WOMENS CHILDRENS HOSPITAL where they have a specialist Vascular Anomalies Clinic and doctors that specialise in PHACE Syndrome.More importantly for Jayda they have the doctors with the experience and expertise to properly evaluate Jayda's anomalies.We are currently in discussions with TWCH and we are now waiting for there evaluation of her medical records and the costs involved.

From the beginning of this journey we have been huge advocates of sharing all we can so that the medical community can figure out what causes this association of physiological abnormalities.We are enrolling Jayda in medical research efforts even though this is being conducted in the U.S. Much research is being done on PHACES but nothing is definitely known and doctors continue to use what limited resources they have to understand why PHACES occurs.