Our New PHACE Friends

From the time Jayda was diagnosed with PHACE Syndrome we have always hoped that we would find people in Australia. Well in the last month we have found two families, thanks to our Facebook PHACE Community. They are Steve, Rose and their daughter Scarlett and Lisa and her daughter Felicity. We have become friends with many of our overseas families and in 2010 were fortunate enough on our Texas trip to meet Yury, Fabian and Gissie. Though it may take some time we can't wait to meet our new Aussie mates. I would like to say a thank you to Felicity's Mum Lisa who has put us in touch with another Neurologist here in Australia so we can get another opinion on Jayda's vascular anomalies.

Steve, Rose and Scarlett

Lisa and Felicity