Jayda's progress

2011 was another big year for Jayda but not as hectic as the previous. Our main focus was Jayda's speech therapy. At the beginning of 2011 Jayda presented with a severe delay in expressive language skills but with age appropriate comprehension and understanding skills. As parents we knew Jayda had excellent comprehension quite beyond her years yet she was getting so frustrated at not getting it out verbally. Now Jayda uses many 2 and 3 word phrases,her vocabulary has really increased,she is counting and copying. We know all children develop at different times,but we know through the PHACE literature that speech and developmental delays happen and she will continue with her speech therapy. Jayda is a very bright and happy girl. She loves playing with her big sister(most of the time),swimming at the beach and riding her bike.

This year she will also start her laser therapy. Her Hemangioma has remained quite stable after being off Propranolol and is going through it's natural regression. There are days still that it becomes very noticeable and the weather and her mood pay a large part in this. As Jayda is also part of the PHACE Syndrome Registry we were recently sent the PHACE Syndrome Handbook, A guide for parents and physicians. It is great little book but the biggest surprise was a Happy Holidays photo from the authors of the book.