Although we have only met one other PHACE family we are in regular contact with many others through the PHACE Syndrome Community website.In particular the Olson family.One day we had seen a photo of little Sophia wearing a onesie with a beautiful design stating "IT'S A BIRTHMARK" on it.It had been airbrushed by Trish's Dad, Mikana.We commented on how cool it looked and Trish said that he would be happy to do one for Jayda.The first we got was a onesie which we loved.Just before the 2010 PHACEing the Future Conference we sent Trish some Reminderbands and a purple top for some airbrushing.When we recieved a package from the U.S. we were greeted with these wonderfull tops,two more which were airbrushed and a shirt from the conference.Jayda loves wearing them as if she knows that they are special.
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