Wednesday, February 24, 2010

Neurology appointment at PMH

Yesterday Jayda had her appointment with her neurologist at Princess Margaret Hospital, it was the first time we'd seen her doctor since we got back from Texas. We had lots to give him, the reports from the MRI/MRA scans done at TCH, Dr Clarks and Dr Metry's reports and we also showed him the information booklets we had been given about PHACE. He asked if he could have a minute to read over the reports,which we gave him. He was happy to hear that Jayda doesn't need to be on aspirin,as this was one of the main questions he asked us to have answered while we were over there. Another thing he read was that surgical intervention was not needed at this stage but if there were any talk of this occuring Dr Clark would like to have us back at TCH. He tried to explain some of the results with us that we weren't 100 percent sure of and it made things alot clearer. He still puts Jayda at a 20% risk of having a stroke by the age of 18mths. He was extremely happy with Jayda's ability to walk along the furntiure and her newly aquired skills of clapping, playing peek a boo with herself and hi fiving us.He mearsured her head circumference and he was happy with the plan for the future scans. He is going to book Jayda in for MRI/MRA of the head and neck in August and then a review appointment with him afterwards.

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